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ハンセン病, 隔離政策, ライフストーリー, Hansen’s disease, Segregation Policy, life story
タイトル（別言語）
I Could Not Keep on Working Because I Had to Go to the Hospital Every Other Day for Medicine : Interview at Kikuchi-Keifūen, a Hansen’s Disease Facility
This is the life story of a man in his 70s living in Kikuchi-Keifūen, a Hansen’s disease facility.
Mr. Masahiko Inaba (his alias in the Hansen’s disease facility) was born in Kumamoto prefecture in 1934. After graduating junior high school, he worked for Kobe Steel. He got married at 26. When Mr. Inaba got Hansen’s disease he went to the Osaka University Hospital to seek a cure. He had to quit his job because his doctor told him that he needed to attend every other day for medicine. He was sent to Kikuchi-Keifūen on 26th May 1965. He was only 31 years old when he entered the Hansen’s disease facility. It was the 5th year of his marriage and the prime time of his life. He was transferred from Hyogo prefecture to Kumamoto by a car but he did not remember if it took one night or a couple of nights to arrive at Kikuchi-Keifūen. The fury that he felt at that time never disappeared and propelled him to join the lawsuit suing the Segregation Policy for unconstitutionality as a member of plaintiffs 33 years later.
In general, many Hansen’s disease ex-patients have a tendency to regard having symptoms as individual adversity. However, Mr. Inaba seemed to have a clear opinion that the Segregation Policy and lack of social systems to support Hansen’s disease patients in their attempts to carry on a normal life style while making regular hospital visits were real problems.
This interview was conducted at the resident association office of Kikuchi-Keifūen on 8th July 2011. Interviewers were Yasunori Fukuoka and Ai Kurosaka. Mr. Inaba was 77 years old at the time of the interview. The interview script was revised with a follow-up interview and then approved by him on 7th December 2012. His stories show his objective and somewhat cynical attitudes toward his own experiences of segregated life in the Hansen’s disease facility. Through the follow-up interview we learned that such attitudes were the product of the relationship between him and intimate people around him. When we interviewed him in 2011 he lamented that his relatives invited him for sad events but never sought him for celebrations. However, when we visited him again in 2012, he happily told us that he was invited for the wedding ceremony of his niece’s children. Mr. Inaba also added that this event showed a hopeful development of the people’s understanding of Hansen’s disease.
During the interview, he told us he has cancer, and it seemed that he was not in good condition. In July 2014, when we met him again at Kikuchi-Keifūen, in spite of his bad condition, he was serving as vice president of the resident association and giving speeches to young students to explain about Hansen’s disease.
「1日おきに薬を取りに来い」では勤めが続かず : ハンセン病療養所「菊池恵楓園」聞き取り《調査ノート》
KY-AA11946779-12-06.pdf
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