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Since I (Fukuoka) was commissioned as a member of the working group of the Verification Committee Concerning the Hansen’s Disease Problem in 2003, I and Kurosaka have been energetically conducting interviews with recovered Hansen’s disease patients and their families. We thought that it was one of the sociologists’ tasks to record the interviews with the people who had gone through hardships due to the wrong policies of the government. They may think that newer information would not come when the interviews are repeatedly practiced on same issue and it will reach the stage of “saturation of knowledge.” However, we still encounter a completely new life story after having interviews with more than 500 people on the Hansen’s disease problems.
The two women introduced in this research note are those who became plaintiffs of the Compensation Lawsuit against the Government by the Family Members of Hansen’s Disease Ex-patients that began in 2016.
In December 2018, we interviewed NA (female, born in October 1934, 84 years old at the time of the interview) at a law firm in Osaka. She was a 5-year-old girl on July 9, 1940 when the government arrested the people in Honmyoji Hamlet in Kumamoto. Together with her parents who were suffering from Hansen’s disease, she was sent to National Sanatorium Kuriu-Rakusenen in Kusatsu, Gunma Prefecture, where she was housed in an attached nursing home.
In April 2019, we had an interview with KS (female, 79 years old at the time of the interview) at a karaoke box near a station in the Kansai region. She was born in March 1940 in Yunosawa Hamlet in Kusatsu, Gunma Prefecture. Her parents were Hansen’s disease patients. Half a year later after the “Yunosawa Hamlet Dissolution Ceremony” was held on May 18, 1941, she and her parents moved to National Sanatorium Nagashima-Aiseien in the Seto Inland Sea, and KS was placed in the nursing home attached to Aiseien. She was only 1 and a half years old at that time.
These two were not Hansen’s disease patients, but they have experienced “another segregation policy” by being housed in nursing homes attached to Hansen’s disease sanatoriums. That is not all. The story of these two women reveals that Honmyoji Hamlet in Kumamoto and Yunosawa Hamlet in Kusatsu were the communities where Hansen’s disease patients helped each other and enjoyed reproductive rights to give a birth to their children and raise them with their free will. We can see that the segregation policy was not just an enforced isolation of Hansen’s disease patients, but also an attempt to strip the Reproductive Rights from them.